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Dementia is one of the greatest fears of people today. This documentary shifts that narrative of fear and hopelessness to one of hope and action. There are things we can do as individuals to reduce our risk of developing dementia. There are ways to connect meaningfully with our loved ones, even if they no longer recognize us. We can live a high quality of life after diagnosis.
Through a series of personal experiences, different people around the world share how they have adapted to a diagnosis of dementia. In turn, we see how they inspire artists and scientists to develop community-based solutions to foster connection and meaning.
Jill Harmon has been caring for her husband with dementia for fourteen years. “We met when we were teenagers at a dance,” she says. “I’m madly in love with him.” And though we experience Jill’s heartbreak and the demands of caring for Don in the late stages of the disease, we also see her resilience and the simple ways in which she and Don still meaningfully connect.
When Helen Rochford Brennan was diagnosed with early-onset dementia she isolated herself. “I didn’t tell anyone,” she says. Helen struggles, but also triumphs as she becomes one of the world’s leading advocates fighting against stigma and for the rights of people with dementia. “You really can have a high quality of life after diagnosis,” she says. She shows us how.
Karin Diamond, Artistic Director of Memoria, leads a theater group of people processing a dementia diagnosis. “The creative work sometimes allows people to connect to themselves,” says Diamond. Their stage productions work to reduce stigma and advocate for support.
Pianist and neuropsychologist, Catherine Jordan, explores why music often has such a huge effect on people with dementia.
David Loughrey, born with profound hearing loss, researches how improving hearing could have a meaningful impact on reducing cases of dementia worldwide.
Walt Dawson’s father developed Alzheimer’s disease when he was ten years old. Walt began an exhaustive letter-writing campaign that culminated in his testimony before the US Congress. As a policy expert today, Dawson draws on his life experience to drive better long-term care support for families. “We don’t really have a system that provides long-term services and supports in this country,” Dawson says. “I felt at that age that that was not right. That we could and should do better. And I still believe that today.”
Dana Walrath experienced caring for her mother with Alzheimer’s disease as an artist and medical anthropologist. “What you’re trained to do as an anthropologist,” she says, “is to be in another cultural setting and understand how the people in that society are thinking and being. Your job is always to meet them where they are.”
These young, networked leaders in science and medicine, policy, and the arts, employ knowledge, creativity and compassion to tackle one of the greatest global health challenges of our time. How do we better connect with our loved ones? How can we, as a society, transform to lessen stigma and be more inclusive? How can we shift our mindsets from fear, to hope and action? Keys Bags Names Words shows us a way.
Official Selection of the 2023 Social Justice Documentary Film Festival
“‘Keys Bags Names Words’ is a kaleidoscopic look at dementia and possible ways to deal with it.” — Bob Strauss, San Francisco Chronicle
“A tremendous insight into the dementia journey for different families” — Sylvia Thompson, The Irish Times
"We were honored to host a screening of the film Keys Bags Names Words at our conference. This beautiful film highlights the importance of shifting our mindset about dementia — from fear and limitation to opportunity for connection, creativity, and quality of life. For those who work in the field of aging services, it reinforces the essential role they play in fostering dignity, reducing stigma, and helping individuals live with purpose at every stage of life.” - Sharon Sullivan, Leading Age
Cynthia Stone has been creating social justice documentary-style pieces for nearly three decades. Based in the San Francisco Bay Area, her work has appeared regionally on KQED, and nationally on PBS, The BBC/PRI, and The Discovery Channel, among others. She has won multiple regional Emmy, Society of Professional Journalists, and Press Club awards. Having covered education, the environment, health, poverty, and equity issues, she’s inspired to highlight people and programs finding solutions to seemingly intractable problems. The wisdom and humor of those in this film helped her better connect with, and care for, her own mother throughout her aging process from her vital active years through her memory loss. Teaming up here with award-winning Oakland-based, feature-film editor and co-producer, Linda Peckham.
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